|Health-related quality of life||Epilepsy links|
|Other QoL issues||Epilepsy surgery links|
|Conferences on QoL|
|Journals and books on QoL|
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The Medical Outcomes Trust is "designed to keep clinicians, researchers, and managers updated about the health outcomes field and to provide opportunities for networking around similar interests. Membership benefits include a variety of customized services that enhance and sustain a dedication to improving health from the patient's perspective."
Researcher Berit Rokne
Hanestad (in English) has some things to say about quality of life.
She is from the University of Bergen. See also:
Helserelatert livskvalitet (in Norwegian). Health Related Quality of Life,
and a definition of quality of life by Siri Næss (in Norwegian)
McMaster University Medical Centre - about HRQoL measurement in chronic diseases.
Here is a CD-ROM on Quality of Life Assessment in Medicine. New in April 1997
Researchers at a workshop on quality-of-life studies in clinical trials, organised by the National Cancer Institute, have made some comments on progress.
The Dana-Farber Cancer Institute discusses some issues related to the collection of health-related quality of life information through a computer based (Apple Newton) questionnaire.
The University of Plymouth, Department of Psychology, Health & Quality of Life Research Centre would like you to participate in a survey concerning Health Role Beliefs as part of their research into quality of life.
News from the Quality of Life Research Unit, University of Toronto The purpose of the Unit has been to develop a means for the Ministry to assess the impact upon individuals with developmental disabilities of the shifting of resources from large institutions to community-based living arrangements. Their definition of QoL is: The degree to which a person enjoys the important possibilities of his/her life.
The International Association for Quality of Life Studies publishes an annual on-line newsletter related to QoL. Those editions available so far are:
Publikationer fra Forskningscenter for Livskvalitet (in Danish)
A list of publications from a Danish Quality of Life Research Centre.
For more information contact:Polish Travel Agency ORBIS Congress Bureau,
Here are lists of related QoL Conferences and Conferences on Neurologic disorders.
Quality of Life - Penry (1986) .
Epilepsy and Quality of Life - Trimble and Dodson (1994) .
Epilepsy in children and adolescents - Aldencamp et al. (1995) .
A new Web Search Engine devoted entirely to neuroscience from the Center for Intelligent Information Retrieval (a search for 'Quality' and 'Life' produces good results)
Spris bibliotek. Sveriges ansvarsbibliotek för hälso- och sjukvård
Spiris - Swedish health related library link.
Epilepsy CHAT (Conversational Hypertext Access Technology) provides a natural-language interface to an information database on epilepsy. Type questions in ordinary English. (Canadian database).
An epilepsy news group can be found at alt.support.epilepsy.
Innehållsrik epilepsi startsida från Lund bibliotek.
Listing of epilepsy links (in Swedish) from Lund City Library.
Norwegian Epilepsy Association.
Danish Epilepsy Association.
University of Washington.
Very comprehensive and updated list of epilepsy internet links.
The Comprehensive Epilepsy Center at The New York Hospital-Cornell Medical Center has a good description of the issues concerning Surgery For Children with Epilepsy
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